Parents Stories (Autumn 2001 reprinted Jan 2002)
A joint publication between Contact A Family and the Family Information Group highlighting situations faced by families who have children with rare conditions and syndromes. These are the personal stones of parents in Northern Ireland, five parents, particularly focusing on the time of diagnosis and disclosure, all written separately. Yet common themes between them all are clear, as is the need to address the issues raised. Very positive feedback from various sources on this unique publication, that some people may find very disturbing. DOWNLOAD COVER PDF
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